Wegeners-Granulomatosis.com - The largest Wegener’s forum on the internet and a great way to meet people with Wegener’s Granulomatosis.

St Thomas’ Wegener’s Trust - A UK based organisation committed to finding the cause, and therefore cure, for Wegener’s Disease.

Vasculitis UK - Information for every type of vasculitis, including Wegener’s Granulomatosis.

Vasculitis Clinical Research Consortium - US based group of academic research centres dedicated to clinical research into vasculitis

GPA/MPA -  Offer a comprehensive overview of Wegener’s Granulomatosis.

Science Based Medicine - While not specifically related to Wegener’s Granulomatosis, it is a useful resource to check the efficacy of unusual remedies and treatments suggested by friends, family and websites.

St Oswalds Hospice - A hospice based in North East England, offering specialist palliative care to adults and children.

MacMillan - Cancer support organisation, also helping others with end of life care and chronic diseases.

Willow Foundation - UK based charity offering special days and experiences to seriously ill 16 to 40 year olds.