Welcome to the Wegener's Disease website


This is my first blog on the Wegener's Disease website. Welcome! My name is Barry Forshaw. I am 39 years old and live in a bungalow in Newcastle upon Tyne, scenic North East England with my beautiful wife, Alicia.

Alicia has Wegener's Granulomatosis, which was diagnosed in 2004. When we met I naturally went online to find out more about this rare disease. I was surprised by how little information was out there.

As time has gone by we have learned to live with Wegener's and we are now expecting a baby in the very near future.

When Alicia learned she was pregnant I searched online again for more information about Wegener's and there was still very little out there.

So I decided to start this website as a place to gather all the information about Wegener's Granulomatosis, or Granulomatosis with Polyangiitis as it is now officially known.

I want to share our story.

If I can help even just a handful of people affected by this terrible disease my efforts will be worth it.

Come and join me on this journey.

Image used under Creative Commons Licence by Odd.note.