Ayesha Ahmed, Wegener's Disease sufferer, dies after double lung transplant

I read a tragic news story this morning. Ayesha Ahmed, who was fighting Wegener's Disease and had a double lung transplant, died at the age of 21. Incredibly, she lives less than 5 minutes away from Alicia and I and was treated at the Freeman Hospital, where Alicia received her treatment. It makes me wonder just how many individuals and families are fighting their own private battle with this disease and nobody knows about it.

Ayesha Ahmed - Wegener's Disease

Ayesha Ahmed - Wegener's Disease

Ayesha was the youngest ever Wegener's sufferer to undergo a double lung transplant. Prior to the operation she had been hooked up to an oxygen machine almost 24 hours per day, and every breath she took was painful. Ayesha often had to use a wheelchair.

Ayesha had the operation in February 2011 but was rushed to hospital four weeks ago as her health deteriorated. She died on the 25th July after developing pneumonia. 

I read about the story on our local newspaper's website, the Evening Chronicle. I have contacted them to thank them for bringing this terrible disease to the public's attention and to see if there is anything Alicia or I can do to help.

Here is the link to the Evening Chronicle article.