The ‘UK Strategy for Rare Diseases’ contains over 50 commitments to ensure people living with a rare disease have access to the best evidence-based care and treatment that health and social services, working with charities, researchers and industry, can provide.
The UK commitments are in 5 areas:
- Making sure patients and their families and carers have the information they need, are listened to and consulted.
- Developing better methods of identifying and preventing rare diseases.
- Improving diagnosis and earlier intervention for those with a rare disease.
- Developing better coordination of care for those with a rare disease, including joined up consultation and treatment schedules.
- Building on research to improve personalised approaches to healthcare for those with a rare disease.
All 4 UK countries will work together to achieve these goals but will produce their own plans by February 2014 to help put the strategy into action.
3 documents set out the countries governments' shared vision.
Let's hope that the reality matches the vision.
Image courtesy of Sean MacEntee.