This is an older news item, but I only just came across it today.
Jason Wadler of Glencoe, Chicago area, ran a fund raising event for the Vasculitis Foundation called Rally in the Alley which drew 225 people. He raised $30,000. The bowling event helped raise awareness of all vasculitis diseases, including Wegener's Disease.
Jennifer Naida of Round Lake, also a fundraiser host, was crowned Mrs. Illinois International in 2010. She was diagnosed with Wegener's in 1983, and she was able to talk to people about the disease, it's symptoms and that there can be hope, given that Jennifer has lived with the disease for 32 years.
You can read the full article here.