Wegener's Disease Resources - St Oswalds Hospice

St Oswald's Hospice is a local resource to the North East of England, and one that is very important to Alicia and I.

St Oswald's provides specialist hospice care for local adults, young people and children. Alicia used their facilities as a young adult, in the early days of her battle with Wegener's Disease. They helped her deal with the chronic pain she was suffering from in a very holistic way. In part this was through drugs, but they also helped psychologically and through other supportive therapies. They even helped Alicia's family to deal with Alicia's illness



Within their adult service, they offer a day hospice, lymphoedema service, an inpatient unit, complementary therapy service, consultant outpatient clinic and an outreach service.

Adults with life limiting conditions are referred to them for pain and symptom management and end of life care.  They care for patients with cancer, as well as those with end stage neurological, cardiac and respiratory conditions. 

Children and young adults

Within their Children's Service, they offer specialist short breaks to children and young people with life limiting conditions and their families.  Children from 0 - 18 can benefit from care at St Oswald's.  They have also developed a service for young adults, aged 18-25, to enable them to continue to support children in their care who are reaching adulthood.

The multi-disciplinary team at St Oswald's includes doctors, nurses, physios, occupational therapists, social workers, chaplain support and complementary therapists.

St Oswald's are a registered charity and their annual running costs exceed £10 million – of which over £6.5 million is raised through voluntary giving.

Despite this, they make no charge for any of their services, ensuring hospice care is available to everyone.

St Oswald's Hospice has produced it's own Youtube video to explain what they do.

Claud Regnard, Consultant in Palliative care was the person that really understood Alicia's pain and got her pain management under control. He was a fantastic help. Alicia also used a wide range of services at St Oswalds, such as the complementary therapies and Cognitive Behavioural Therapy.

St Oswald's is a truly great community resource here in the North East of England.